Report from ALS Day 2018 at the Charité

Charité ALS Day 2018

On the 14th of April, the 9th ALS Day took place at the Charité with over 200 people affected by ALS, their relatives, medical service providers and employees of the Berlin ALS ambulance. They were informed about current studies, the state of basic research and treatment innovations.

With the kind permission of the Charité, we have put together in this article the video recordings of the lectures as well as the presentations chronologically for you (only available in German).

09:30

ALS study world: Levosimendan, Fasodil, CK-107 and others

Speaker: Prof. Dr. Thomas Meyer
Part 1: Information on the current clinical research situation
Click here for video recording …
Part 2: Treatment innovations at the ALS – Projects 2018-2019
Click here for video recording …
Part 3: Research projects in basic research at ALS
Click here for video recording …
Click here for the presentation [PDF 3,83 MB]

10:15

Open questions and answers about cause, diagnosis and treatment of ALS

Speaker: Prof. Dr. Thomas Meyer
Click here for video recording …

10:45 Coffee break

11:10

ALS basic research – current status

Speaker: Christopher Secker
Click here for video recording …
Click here for the presentation [PDF 5,93 MB]

11:40

Drugs containing cannabis- treatment results and new legislation

Speaker: Dagmar Kettemann
Click here for video recording …
Click here for the presentation [PDF 700 KB]

12:00

Edaravone – What can we expect from the new ALS drug?

Speaker: André Maier
Click here for video recording …
Click here for the presentation [PDF 1,06 MB]

12:20 Lunch break

13:30 Workshops

Workshop 1:

Respiratory support and cough assistance in ALS

Speaker: Ansgar SchĂĽtz
Moderator: Thomas Meyer

Workshop 2:

Nursing support at the ALS

Speaker: Christine Schmidt-Statzkowski
Moderator: Dagmar Kettemann

Workshop 3:

Mobility and communication aids at the ALS

Speakers: André Maier, Erik Herschel, Judith Wawrzyniak

Information and advice stands were offered on the following topics:

  • Orthotics
  • Nutrition management
  • Assistive devices

14:30 End of the event

Information on the current clinical research situation

[Length: 17:32 min]

Treatment innovations at the ALS – Projects 2018-2019

[Length: 38:12 min]

Research projects in basic research at ALS

[Length: 12:50 min]

Open questions and answers about cause, diagnosis and treatment of ALS

[Length: 33:35 min]

ALS basic research – current status

[Length: 22:57 min]

Drugs containing cannabis- treatment results and new legislation

[Length: 9:27 min]

Edaravone – What can we expect from the new ALS drug?

[Length: 18:36 min]

Source: CHARITÉ – UNIVERSITĂ„TSMEDIZIN BERLIN, CharitĂ© Center for Neurology, Neurosurgery and Psychiatry